Browsing Paediatrics by Title
Now showing items 1-19 of 19
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Antiepileptic drug treatment of rolandic epilepsy and Panayiotopoulos syndrome: clinical practice survey and clinical trial feasibility
(2015-01)BACKGROUND: The evidence base for management of childhood epilepsy is poor, especially for the most common specific syndromes such as rolandic epilepsy (RE) and Panayiotopoulos syndrome (PS). Considerable international ... -
Association of quality of paediatric epilepsy care with mortality and unplanned hospital admissions among children and young people with epilepsy in England: a national longitudinal data linkage study.
(2019-09)Background: Concerns have been raised about variation in care quality and outcomes among children and young people with epilepsies in England. We aimed to investigate the association between quality of paediatric care, ... -
Children and Young People-Mental Health Safety Assessment Tool (CYP-MH SAT) study: Protocol for the development and psychometric evaluation of an assessment tool to identify immediate risk of self-harm and suicide in children and young people (10-19 years) in acute paediatric hospital settings.
(2018-04)INTRODUCTION: Currently, no standardised, evidence-based assessment tool for assessing immediate self-harm and suicide in acute paediatric inpatient settings exists. AIM: The aim of this study is to develop and test the ... -
Core Health Outcomes in Childhood Epilepsy (CHOICE): Development of a core outcome set using systematic review methods and a Delphi survey consensus.
(2019-05)Objective: Establishing a core set of outcomes to be evaluated and reported in intervention trials aims to improve the usefulness of health research. There is no established core outcome set (COS) for childhood epilepsies. ... -
Core Health Outcomes In Childhood Epilepsy (CHOICE): protocol for the selection of a core outcome set.
(2017-11-28)Background: There is increasing recognition that establishing a core set of outcomes to be evaluated and reported in trials of interventions for particular conditions will improve the usefulness of health research. There ... -
The current state of epilepsy guidelines: A systematic review
(2016-01)Objective: The International League Against Epilepsy (ILAE) Epilepsy Guidelines Task Force, composed of 14 international members, was established in 2011 to identify, using systematic review methodology, international ... -
Developing clinical practice guidelines for epilepsy: A report from the ILAE Epilepsy Guidelines Working Group
(2015-12)Clinical practice guidelines (CPGs) contain evidence-based recommendations to guide clinical care, policy development, and quality of care improvement. A recent systematic review of epilepsy guidelines identified considerable ... -
Drooling Reduction Intervention randomised trial (DRI): comparing the efficacy and acceptability of hyoscine patches and glycopyrronium liquid on drooling in children with neurodisability.
(2018-04)OBJECTIVE: Investigate whether hyoscine patch or glycopyrronium liquid is more effective and acceptable to treat drooling in children with neurodisability. DESIGN: Multicentre, single-blind, randomised controlled ... -
Epilepsy deaths in children: Improvements driven by data and surveillance in pediatrics.
(2019-09)Epilepsy-related death in children and young people deserves understanding and intervention along with epilepsy-related deaths in adults. Risk of death from epilepsy varies at different ages, and the specific calculations ... -
Evaluation of a questionnaire to measure parent/carer and child/young person experience of NHS epilepsy services.
(2018-12)Purpose: To validate a patient-reported-experience-measure, PREM, of the NHS paediatric epilepsy service.Methods: Section 1 of the PREM recorded demographic and clinical characteristics, and Section 2 collected information ... -
Guidelines and Quality Standards in the Care of Children with Epilepsy.
(2016-05)To provide quality care for children with epilepsy there is a continuing need to synthesize clinical research into forms that reflect best clinical practice. The design of evidence-based guidelines allows the gathering of ... -
Guidelines, training, audit, and quality standards in children's epilepsy services: Closing the loop.
(2014-11)There has been considerable evolution in epilepsy healthcare for children over the last decade in the United Kingdom. There has been no single explanation for this. The development of national clinical guidelines, locally ... -
Integrated care for childhood epilepsy: ongoing challenges and lessons for other long-term condition
(2016-11)Epilepsy care has been identified as a major global issue-and there are many recognised concerns in the UK for children and young people with the condition. A proposed new model could help to increase multisector integration, ... -
ISPAD Annual Conference 2017 Highlights.
(2018-08)The article focuses on International Society for Pediatric and Adolescent Diabetes's 2018 conference. Topics discussed include role of good glycemic control in treating pediatric diabetes; sustained proliferation and ... -
Living with uncertainty and hope: A qualitative study exploring parents' experiences of living with childhood multiple sclerosis.
(2017-06)Background There is growing recognition that multiple sclerosis is a possible, albeit uncommon, diagnosis in childhood. However, very little is known about the experiences of families living with childhood multiple sclerosis ... -
Observational Study of Pulse Transit Time in Children With Sleep Disordered Breathing.
(2020-05)Background: Pulse transit time (PTT) is a non-invasive measure of arousals and respiratory effort for which we aim to identify threshold values that detect sleep disordered breathing (SDB) in children. We also compare the ... -
Parents' and carers' experiences of transition and aftercare following a child's discharge from a paediatric intensive care unit to an in-patient ward setting: A qualitative systematic review.
(2018-11-16)OBJECTIVES: To explore parents' experiences of transition and aftercare following their child's discharge from a paediatric intensive care unit to an in-patient ward. METHODS: A qualitative systematic review was conducted. ... -
Safety and effectiveness of hormonal treatment versus hormonal treatment with vigabatrin for infantile spasms (ICISS): a randomised, multicentre, open-label trial.
(2017-01)BACKGROUND: Infantile spasms constitutes a severe infantile epilepsy syndrome that is difficult to treat and has a high morbidity. Hormonal therapies or vigabatrin are the most commonly used treatments. We aimed to assess ... -
An unusual cause of sudden onset shoulder pain in a child
(2018-01-09)6-year-old previously well child presented to the emergency department with a history of sudden onset left shoulder pain.
